#neisvoid

9 posts · Last used 16d

My friends who use wheelchairs and specifically those of you with spinal cord injuries, I have some questions. Feel free to boost this far and wide. We really want to know the tips and tricks. I am an ambulatory wheelchair user. My spouse has a brand new SCI. We're good on many things because of my needs. But with him now not being able to stand, how do we make the kitchen easier for him to use? One thought I had was a counter or table that's lower than the built-in for the coffee maker and other stuff he uses a lot. Would that be helpful? Honestly, go beyond the kitchen. Tell me anything that's going to make our home even more accessible. A specific issue is our sink. It's a corner sink and I cannot use it from my chair. Any ideas at all? (Don't worry about ramps and room for wheelchairs. We did that for me, so it's there waiting for him.) #SCI #NEISVoid #SpinalCordInjury
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What if movement didn't have to be big to matter? Unbound is a film woven from 20 bodies, 20 stories, and 1 thread of connection. Join us for the premiere on July 29th at 6:30 PM ET. https://www.eventbrite.com/e/unbound-global-premiere-live-qa-tickets-1990987249459 A reflection on my process for this film on my blog: https://liapas.com/2026/07/11/unbound-a-dance-film/ #MECFS #LongCovid #NEISvoid #disability #dance #DisabledArt
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Dringende Frage für einen Notfall im Familienkreis: Falls irgendjemand Tips hat, wie man mit gesicherter Diagnosis Magenlähmung (Gastroparese) an nen Arzt kommt der ne Ernährungssonde legt, haut raus. KH versteht die Dringlichkeit nicht, der Patient verhungert seit Monaten weil er nichts essen kann, Ärzte denken es wären nur Schluckbeschwerden oder Essstörung (trotz, ich wiederhole, gesicherter Diagnose) und reden die komplexen Vorerkrankungen des Patienten klein. Notaufnahmenbesuche ohne Erfolg. Massive Nährstoffmängel, rapider Gewichtsverlust ("ist doch schön, dass Sie abnehmen!"),, in dem Tempo wird er vor Ablauf des Sommers tödlich verhungern. Wir sind bereit, deutschlandweit zu fahren. #AskFedi #NEISvoid
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